Agenda for Meeting Eight: February 2-3, 2012, in San Francisco, Cal.

Millberry Union,University of California, San Francisco 500 Parnassus Avenue San Francisco, CA 94143


Thursday, February 2


9:00 – 9:15 a.m. - Welcome and Opening Remarks

Amy Gutmann, Ph.D.

Commission Chair

James Wagner, Ph.D.

Commission Vice-Chair


9:15- 10:30 a.m. - Session 1: Ethics and Practice of Whole Genome Sequencing in the Clinic                                     

Retta Beery

Mother of twins who benefitted from improved diagnosis gained by whole genome sequencing

Richard Gibbs, Ph.D.

Wofford Cain Professor, Department of Molecular and Human Genetics, Director, Human Genome Sequencing Center, Baylor College of Medicine

Daniel Masys, M.D.

Affiliate Professor, Biomedical and Health Informatics, University of Washington School of Medicine


10:30 a.m. – 10:45 a.m. - Break


10:45 a.m. – 12:00 p.m. - Session 2: Privacy I – Privacy and the Public Good                                      

George Annas, J.D., M.P.H.

Chair, Health Law, Bioethics & Human Rights, William Fairfield Warren Distinguished Professor, Boston University School of Public Health

Mark A. Rothstein, J.D.

Herbert F. Boehl Chair of Law and Medicine, University of Louisville School of Medicine


12:00 – 1:30 p.m. - Lunch Break


1:30 – 2:30 p.m. - Session 3: Privacy II – Control, Access and Human Genome Sequence Data      

Jane Kaye, D.Phil., L.L.B.

Director of the Centre for Law, Health and Emerging Technologies (HeLEX), Oxford University                                             

John Wilbanks

Founder, Consent to Research, Senior Fellow, Kauffman Foundation, Research Fellow, Lybba


2:30 – 3:30 p.m. - Session 4: Privacy III – Law Enforcement Use and Access to Genomic Information

Melissa Mourges, J.D.

Assistant District Attorney, Chief, Forensic Sciences/Cold Case Unit, New York County District Attorney's Office

Pilar Ossorio, J.D., Ph.D.

Associate Professor of Law and Bioethics, University of Wisconsin-Madison


3:30 – 3:45 p.m. - Break


3:45 – 5:00 p.m. - Session 5: Roundtable


5:00 – 5:15 p.m. - Closing Remarks

Amy Gutmann, Ph.D.

James Wagner, Ph.D.



Friday, February 3


9:00 – 9:15 a.m. - Opening Remarks

Amy Gutmann, Ph.D.

James Wagner, Ph.D.


9:15 – 10:00 a.m. - Session 6: Notions of Self

John Perry, Ph.D.

Emeritus Professor of Philosophy, Stanford University, Distinguished Professor of Philosophy, University of California, Riverside

Marya Schechtman, Ph.D.

Professor of Philosophy, University of Illinois at Chicago


10:00—10:45 a.m. - Session 7: Research Update and Clinical Considerations                                 

Bernard Lo, M.D.

Professor of Medicine, Director, Program in Medical Ethics, University of California, San Francisco                            

Anthony Wagner, Ph.D.

Professor of Psychology and Neuroscience, Stanford University


10:45 a.m. – 11:00 a.m. - Break


11:00 a.m. – 11:50 a.m. - Session 8: Roundtable


11:50  – 12:00 p.m. - Concluding Remarks

Amy Gutmann, Ph.D.

James Wagner, Ph.D.