Transcript, Meeting 14 Session 3

        DR. GUTMANN: Welcome back everyone. We are moving on to the next topic on incidental findings, and that is a discussion of the ethical management of incidental findings in the research context, and Christine Grady will begin our discussion for us. Christine.

        DR. GRADY: Thank you. First I want to recognize the other members of my working group, Nita Farahany and Nelson Michael. And Nelson isn't with us today because he has been deployed.


Mon, 08/19/2013

Transcript, Meeting 14 Session 2

         DR. WAGNER:  The Commissioners will recall that at our meeting in Washington we got into a conversation on several modalities that can generate incidental findings, Lisa Lee led that for us, our executive director, but for the remainder of the day we are going to focus on the contexts within which those modalities generate incidental findings.


Mon, 08/19/2013

Transcript, Meeting 14 Session 1


DR. GUTMANN:  Welcome everybody.  It is my great pleasure to welcome members o the Commission and the Commission's staff to the University of Pennsylvania. This is the second meeting we've had here, and this is the first meeting, however, we had in the Smilow Center because when this Commission began several years ago the Smilow Center didn't exist.

          And it not only exists, but it is fully occupied, and it is occupied with work that is obviously relevant to the subject of our Commission.


Fri, 08/30/2013

Transcript, Meeting Thirteen, Session Seven

                  DR. WAGNER:  We want to do in our final session, Roundtable Session today, what we always afford folks.  And those of you that were here this morning saw the drill, so you won't be surprised at the question that begins our conversation.  And that is to run down the table and ask you in your particular areas in the sessions that we had this afternoon on both education and direct‑to‑consumer issues regarding incidental findings, that one thing you would want to be certain that our Commission takes into consideration as we prepare the report.


Tue, 04/30/2013

Transcript, Meeting Thirteen, Session Six

                        DR. GUTMANN:  Our first speaker is Dr. Thomas Donaldson, the Mark Winkelman Professor of Legal Studies at the Wharton School of the University of Pennsylvania.  Dr. Donaldson is also the director of Zicklin Center for Business Ethics Research at Wharton and his book, "Ties That Bind: A Social Contracts Approach To Business Ethics" was the winner of the 2005 SIM Academy of Management Best book Award.


Tue, 04/30/2013

Transcript, Meeting Thirteen, Session Five

                        DR. WAGNER:  And welcome everybody back.

                        This panel is assembled like our prior panel, except focusing in the area of ‑‑ in the clinical context.  And again, we're delighted to have three speakers representing three different perspectives here.

                        And our first speaker is Haavi Morreim ‑‑ am I saying that ‑‑ it's good enough?  You know not to challenge me from my prior ‑‑ and she is professor in the department of internal medicine in the College of Medicine at the University of Tennessee.


Tue, 04/30/2013

Transcript, Meeting Thirteen, Session Four

                        DR. GUTMANN:  We have a tradition now after hearing from each of you individually, we find it's really helpful to have a roundtable so we can discuss among ourselves and hear from each of you advice that you would have for us on the report that we will do.

                        The tradition is to ask each of you, we will go down the line starting with Robert.

                        If there is one specific issue that we address or one specific recommendation or finding that you would advise us to include in our report, what would that be?


Tue, 04/30/2013

Transcript, Meeting Thirteen, Session Three

                        DR. GUTMANN:  We are going to make a quick transition to our next panel.

                        DR. WAGNER:  Please, Drs. London, Bandettini and Hilgenberg, please come forward.  I said that wrong!  Bandettini.  I apologize.

                        It is my privilege to introduce this next panel to the Commission.  This is the first of the panels that Lisa described to us, where we will be able to hear from an ethicist, a practitioner, and someone whose incidental findings were reflected in some unique way.


Tue, 04/30/2013

Transcript, Meeting Thirteen, Session Two

                        DR. GUTMANN:  So our first panel this morning, we're going to hear about the ethical challenges of emerging technologies quite generally and how these challenges can inform our understanding and approach to the topic of incidental findings.  We'll hear from each speaker for ten minutes and then we're going to open the session for questions and discussions.  A quick reminder.  When you speak, make sure you've turned your mike on and the red light will come on.  And we will begin with our first speaker, Dr.


Tue, 04/30/2013

Transcript, Meeting Thirteen, Session One







9:04 a.m.


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Also in Attendance:


Anita Allen, J.D., Ph.D.


John D. Arras, Ph.D


Barbara F. Atkinson, M.D.


Nita A. Farahany, J.D., Ph.D.


Christine Grady, R.N., Ph.D.


Stephen L. Hauser, M.D.


Raju S. Kucherlapati, Ph.D.



Tue, 04/30/2013


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