meetings

TRANSCRIPT, Meeting 8 Session 1

            DR. WAGNER:  I think we can move right into our first session.

            We have the privilege of hearing from these three, who I promise to be very interesting speakers, going to talk not only about personal experiences with whole genome sequencing and its effect on families, but also, we are going to receive this morning, a brief update on the current state of human genome sequencing, and we hope all will discuss some of the ethical issues that are facing us.

Date

Thu, 02/02/2012

TRANSCRIPT, Meeting 8 Opening Remarks

            DR. GUTMANN:  First of all, welcome, everybody and good morning. 

            I am Amy Gutmann and I am Chair of the Presidential Commission for the Study of Bioethics, and I am also President of the University of Pennsylvania, and on behalf of myself and our terrific Vice Chair, Jim Wagner, who is President of Emory University, I'd like to welcome you to the first day of our deliberations, and I also am delighted that we're in San Francisco, and I have to give a very special thanks to Dr. Stephen Hauser, for enabling us to be at the UCSF Campus.

Date

Thu, 02/02/2012

TRANSCRIPT, Meeting 7, Session 10

Amy Gutmann:  Okay. Welcome back.  This is the final session of this meeting and it’s important for this session for us to go back to the fundamental question put to the commission.

Date

Thu, 11/17/2011

TRANSCRIPT, Meeting 7, Session 9

Amy Gutmann:  So here's what I—yes, here's what I suggest—we segue to Dan Sulmasy, who will introduce the topic of compensation on behalf of the commission and the thinking today about it.  And—

 

James Wagner:  [Inaudible]. 

 

Amy Gutmann:  —Daniel and Karen, if you would like to stay at the table, we would be happy to include you in the discussion.  I see nods, right?  Good. 

 

James Wagner:  Let's do that. 

 

Date

Thu, 11/17/2011

TRANSCRIPT, Meeting 7, Session 7

Amy Gutmann:  Thank you. I'm going to wait until Mr. Ken Feinberg arrives, and I know he's here so–so let me set the context for this session, and we are extremely pleased to have a special guest with us, and here's the context.

Date

Wed, 11/16/2011

TRANSCRIPT, Meeting 7, Session 8

James Wagner:  Good morning and commissioners, welcome back, guests, welcome to the second day of our what did we say this is, the seventh meeting? 

 

Amy Gutmann:  Yes. 

 

Date

Thu, 11/17/2011

TRANSCRIPT, Meeting 7, Session 4

James Wagner:  I’ll tell you what.  Maybe we will get rolling.  Dr. Hauser will join us in just a moment.  Welcome back everyone and Commissioners.

Date

Wed, 11/16/2011

TRANSCRIPT, Meeting 7, Session 1

Amy Gutmann:  Good morning, everybody.  I’m Amy Gutmann.  I’m Chair of the Presidential Commission for the Study of Bioethical Issues, and it’s my pleasure along with our Vice Chair,   Jim Wagner, who is President of Emory University and my partner with our colleagues here.  It’s my pleasure to invite you to the seventh meeting of the commission’s deliberations.  This is day one of our seventh meeting.

Date

Wed, 11/16/2011

TRANSCRIPT, Meeting 7, Session 5

James Wagner:  Good point.  So we are a rare situation of finishing a session ahead of schedule, so why don’t we just move into—

 

Amy Gutmann:  So we are going move into our next discussion which is Study Design.  Steve Hauser is going to introduce our thinking on this.  Again, we will open it up for broader discussion of the Commission and our participants in the public.

 

Date

Wed, 11/16/2011

TRANSCRIPT, Meeting 7, Session 6

James Wagner:  I believe the commission is present and assembled, so let us get underway. In this next hour and 15 minutes, we will be addressing three subjects. It is interesting. All are sort of the place-based considerations. They have to do with place where research is done. The three subjects are equivalent protections, community engagement, and site selection. Christine, I don't know.

Date

Wed, 11/16/2011

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