transcripts

Transcript, Meeting 14 Session 7

DR. WAGNER: Our next session will focus on models for integrating science and ethics. And to kick us off we are joined by Doctor Deborah Johnson, the Anne Shirley Carter Olsson Professor of Applied Ethics in the Science, Technology and Society Program at the School of Engineering and Applied Sciences at the University of Virginia.

Date

Tue, 08/20/2013

Transcript, Meeting 14 Session 6

DR. GUTMANN:  Good morning, everybody.  If I could ask everyone to take a seat, I'd really appreciate that, so we could get started.  It's wonderful to see everyone here this morning.  I am Amy Gutmann.  I'm President of the University of Pennsylvania and Chair of the Presidential Commission for the Study of Bioethical Issues.  And I'm really delighted on behalf of myself and our Commission Vice Chair, James Wagner, who is President of Emory University to welcome you back here to the Smilow Center for the second day of our Fourteenth Meeting of our Commission.

Date

Tue, 08/20/2013

Transcript, Meeting 14 Session 5

DR. GUTMANN:  We are ready to do our wrap up session for this afternoon. Appropriately the wrap up session is about some overarching recommendations that span the three contexts.

They are important because incidental findings don't just occur in the clinical, research, and DTC context, and they are not just generated by large scale genetic sequencing, imaging, and testing of biological specimens.

We take to heart where we do not think there is genetic exceptionalism, these are issues that span not only the three contexts but other contexts as well.

Date

Mon, 08/19/2013

Transcript, Meeting 14 Session 4

DR. WAGNER: All right, we are now turning to the third and final, direct to consumer. Anita, thank you for chairing that sub group and we’re interested to hear the report.

Date

Mon, 08/19/2013

Transcript, Meeting 14 Session 3

DR. GUTMANN: Welcome back everyone. We are moving on to the next topic on incidental findings, and that is a discussion of the ethical management of incidental findings in the research context, and Christine Grady will begin our discussion for us. Christine.

DR. GRADY: Thank you. First I want to recognize the other members of my working group, Nita Farahany and Nelson Michael. And Nelson isn't with us today because he has been deployed.

Date

Mon, 08/19/2013

Transcript, Meeting 14 Session 2

DR. WAGNER:  The Commissioners will recall that at our meeting in Washington we got into a conversation on several modalities that can generate incidental findings, Lisa Lee led that for us, our executive director, but for the remainder of the day we are going to focus on the contexts within which those modalities generate incidental findings.

Date

Mon, 08/19/2013

Transcript, Meeting 14 Session 1

 

DR. GUTMANN:  Welcome everybody.  It is my great pleasure to welcome members o the Commission and the Commission's staff to the University of Pennsylvania. This is the second meeting we've had here, and this is the first meeting, however, we had in the Smilow Center because when this Commission began several years ago the Smilow Center didn't exist.

          And it not only exists, but it is fully occupied, and it is occupied with work that is obviously relevant to the subject of our Commission.

Date

Fri, 08/30/2013

Transcript, Meeting Thirteen, Session Seven

Session 7:  Roundtable Discussion       

DR. WAGNER:  We want to do in our final session, Roundtable Session today, what we always afford folks.  And those of you that were here this morning saw the drill, so you won't be surprised at the question that begins our conversation.  And that is to run down the table and ask you in your particular areas in the sessions that we had this afternoon on both education and direct‑to‑consumer issues regarding incidental findings, that one thing you would want to be certain that our Commission takes into consideration as we prepare the report.

Date

Tue, 04/30/2013

Transcript, Meeting Thirteen, Session Six

Session 6:  Incidental Findings in the Direct-to-Consumer Context      

DR. GUTMANN:  Our first speaker is Dr. Thomas Donaldson, the Mark Winkelman Professor of Legal Studies at the Wharton School of the University of Pennsylvania.  Dr. Donaldson is also the director of Zicklin Center for Business Ethics Research at Wharton and his book, "Ties That Bind: A Social Contracts Approach To Business Ethics" was the winner of the 2005 SIM Academy of Management Best book Award.

Date

Tue, 04/30/2013

Transcript, Meeting Thirteen, Session Five

Session 5:  Incidental Findings in the Clinic   

DR. WAGNER:  And welcome everybody back.

This panel is assembled like our prior panel, except focusing in the area of ‑‑ in the clinical context.  And again, we're delighted to have three speakers representing three different perspectives here.

And our first speaker is Haavi Morreim ‑‑ am I saying that ‑‑ it's good enough?  You know not to challenge me from my prior ‑‑ and she is professor in the department of internal medicine in the College of Medicine at the University of Tennessee.

Date

Tue, 04/30/2013

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