transcripts

TRANSCRIPT, Meeting 9, Session 2

DR. WAGNER:  And Drs. Anderson and Klein, if you could join us?

                        Welcome to you both.  This session, as Amy said, focuses on pediatric research and practice, benefits as well as some of the practical challenges that it poses, and we will hear first from Dr. Michael Anderson here on behalf of the American Academy of Pediatrics, Vice President and Chief Medical Officer for University Hospital's Case Medical Center, and Associate Professor of Pediatrics at Case Western Reserve School of Medicine in Cleveland.

Date

Thu, 05/17/2012

TRANSCRIPT, Meeting 9, Session 1

DR. GUTMANN:  Thank you.  Could I invite our first presenters up to the table, please, and thank you all for being here.  I thank you, before we get to ask you the hard questions, which you then may not thank us for being here.

                        We're going to begin our day with the discussion of Special Considerations for Research on Children because that's the fundamental issue that leads us to be dealing with this charge and we have with us Dr. David DeGrazia, who's a Professor of Philosophy at George Washington University.  Welcome, David.

Date

Thu, 05/17/2012

TRANSCRIPT, Meeting 9, Opening Remarks

DR. GUTMANN:  Good morning, everybody.  I'm Amy Gutmann.  I'm President of the University of Pennsylvania and I have the privilege of serving as Chair of the Presidential Commission for the Study of Bioethical Issues, and I welcome you all here this morning.

                        On behalf of myself and our Vice‑Chair Jim Wagner, who will say a few words in a minute, I would like to welcome you.  This is our ninth meeting of the Presidential Commission and we have some important work to do.

Date

Thu, 05/17/2012

TRANSCRIPT, Meeting 8 Session 2

DR. GUTMANN:  So, we're off to a great start, and now, we're turning our attention to discussing directly, questions of individual privacy and the public good, and I emphasize both, individual privacy and the public good, as they relate to whole genome sequencing, and we've already had hints of this issue in our earlier session.

Date

Thu, 02/02/2012

TRANSCRIPT, Meeting 8 Session 6

DR. GUTMANN:  Good morning, everybody.  I'm Amy Gutmann.  I am Chair of the Presidential Commission for the Study of Bioethical Issues and President of the University of Pennsylvania, and my Vice Chair, Jim Wagner, who is President of Emory University will lead off this morning's session, but let me just do a few preliminary things, if I may.

Date

Fri, 02/03/2012

TRANSCRIPT, Meeting 8 Session 5

            DR. GUTMANN:  So, thank you all, first, for your presentations and second, for participating in a roundtable, and square roundtable, yes, and if we have -- do we have Dan's slide about attitudes towards privacy that we could put up, so, why don't we -- because we had asked Dan about what they found.  So, Dan, why don't you just say a few -- just explain what you found, just because I'm going to ask a question about privacy to everybody.

            DR. MASYS:  Okay.

            DR. GUTMANN:  Go ahead.

Date

Thu, 02/02/2012

TRANSCRIPT, Meeting 8 Session 4

DR. GUTMANN:  Sorry, I turned it off. We're now going to switch gears to focus on law enforcement use and access to genetic information, and to do so I first would like to welcome Melissa Mourges.  Thank you very much.

            Ms. Mourges is an Assistant District Attorney and the Chief of the Forensic Sciences Cold Case Unit of the New York County DA's Office.

Date

Thu, 02/02/2012

TRANSCRIPT, Meeting 8 Session 8

DR. WAGNER:  Let's go ahead and collect some thoughts for a final session here.  Christine.  I got you.  Actually I shouldn't have been yelling at you because I don't see Dan or Nelson here.   Oh, we got Nelson.  Why don't we - Dan is so wonderfully perceptive.  He can jump in halfway through this and he is good like that, so let's go ahead and get started.

            Oh, here's Dan.  Perfect, perfect timing.  Perfect timing.

Date

Fri, 02/03/2012

TRANSCRIPT, Meeting 8 Session 7

DR. GUTMANN:  Yes, we are going to quickly switch speakers.  So in this discussion we will focus on current clinical and research experience with advancing neuroscience, and I'm really delighted to have Dr. Bernie Lo with us who will introduce us to ethical issues in clinical care and Dr. Anthony Wagner who will be with us in a moment who will bring us up to date on recent scientific advances in neuroscience.

Date

Fri, 02/03/2012

TRANSCRIPT, Meeting 8 Session 3

                      

            DR. WAGNER:  Well, good afternoon.  Welcome back, to our guests.  This Session 3 is also on the privacy issues, control, access and human genome sequence data.

            I remind the folks joining us, that if you develop questions during these presentations, or as we are asking questions, the staff can help you locate a card to get that question up to the front, and we're very happy to interject your thoughts and comments.  This is a learning period for the Commission.

Date

Thu, 02/02/2012

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